People with cancer face many emotional, psychological and practical day-to-day demands, in addition to the debilitating physical impacts of the disease and its treatment.1
Psychosocial care is an important aspect of cancer care in ensuring the psychological and emotional well-being of the cancer patient are recognised, addressed and managed during all phases of the cancer care continuum.2
There are currently no national data available for this indicator. Cancer Australia is progressing the development of this indicator.
Cancer patient experience data are collected by some states in Australia.
Information about the measure(s):
The recommended measures for monitoring cancer patient experience at the national level are:
a. Patient information, communication, education (diagnosis):
(i) Proportion of patients reporting they understood their diagnosis.
(ii) Proportion of patients who were given written information about their diagnosis.
b. Patient information, communication, education (treatment):
(i) Proportion of patients who were offered a written assessment and care plan.
(ii) Proportion of patients who were given the name of a Clinical Nurse Specialist for treatment support.
c: Patient co-ordination and integration of care, continuity and transition:
(i) Proportion of patients reporting adequate involvement in decisions about care and treatment.
(ii) Proportion of patients reporting that their views were taken into account during treatment.
d: Respect for patient preference:
(i) Proportion of patients reporting that the possible side effects of treatments were explained in an understandable way.
(ii) Proportion of patients given written information about the side effects of treatments.
The above measures were derived from the National Health Service (NHS) England Cancer Patient Experience Survey (CPES). More information about the CPES can be found here.
Links to other content:
1. Cancer Australia. Psychosocial Care. Sydney: Cancer Australia. Available here
2. Cancer Australia 2014. Clinical guidance for responding to suffering in adults with cancer. Available here.